The next time I update will be from the best place ever! Home! By the end of this week, provided Eagan behaves himself, I have my babies at home for the first time since April. Eagan will be going home with a heart monitor, feeding tube, and a few meds, including shots. I are so very excited to get my boy home. He is doing awesome and growing like a little weed. Both of Eagan and I still have lots of things to do before we can get home. Eagan needs a Cystic Fibrosis test because he is positive for the gene. Eli is also but he is only a carrier. Eagan also has to pass his car seat test to make sure he can breathe properly while buckled in. He needs the Synagis shot. This shot reduces the severity of RSV (Respiratory Syncytial Virus) but does not prevent it. I still have to meet with Pharmacy about his shots, schedule a few more appointments, and get everything situated with prescriptions, insurance, etc.
My family and I also took the big kids to the Atlanta Zoo today. This is our last family outing until April 2013. Eagan will not be able to go anywhere but doctor appointments and cannot be around large crowds or children. This will also be really hard on the big kids, because essentially, they will be quarantined too. If either one of them caught anything, it would be almost impossible to keep Eagan from getting it as well. It is going to be long and very boring, but it is worth it to keep little man healthy and alive.
Eli and Evelyn had a great time at the zoo. They could name the majority of the animals and were thrilled to see some of their favorites in person. Truth be told, I am not sure who likes the zoo more between me and the kids.
Weight
10 lb 2 oz
Breathing
Eagan is breathing all by himself!
Vein and Artery Access
Eagan has a broviac sub-clavian line on the left side as of Day 103.
Medications
Zantac was added for his reflux.
He is also on Diflucan as a preventative measure.
Eagan gets a shot of Lovenox twice a day.
He is also back on Synthroid for low thyroid levels.
Eagan gets a shot of Lovenox twice a day.
He is also back on Synthroid for low thyroid levels.
Nutrition
Eagan is also getting 30 cc's of breast milk every hour
by feeding tube. When Eagan cooperates, he gets four bottles of 10 cc's of
breast milk a day, if he chooses to wake up for them.
Transfusions
September 4 - Transfusion #39
Upcoming Tests
Eagan has a Cystic Fibrosis test Monday.
He also has a car seat test to determine if he can keep his airway open on Monday.
1 comments:
Sooooo excited for your family!!! What amazing news. Eagan is quite the fighter-- it is sooo sooo great to hear he will be where he belongs...at home with his family:-)
~The Earle Family
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