Today was a very busy day. We closed on our very first house and we move in tomorrow. I am thrilled to have a place to bring Eagan home to and give Eli and Evelyn rooms that I can really make their own.
Eagan had a very busy day also. I went to see him this morning but really was only able to see him for five minutes because he had to have several labs and procedures done. Today is the first day I have not taken a picture of him. Unfortunately, his white blood count is very elevated again and his blood cultures are coming back positive. He has a systemic yeast infection. His PICC line has been removed so the infection does not spread due to the line. The downside is he will need multiple IVs placed and arterial sticks. Once his blood cultures start coming back negative, a new PICC line will be placed if possible. If a PICC line cannot be placed, due to how tiny and fragile Eagan's veins are, he will need a central line. Placing a central line requires anesthesia and is considered a surgery. Two incisions are made, one in the chest and one in the neck. Please be in prayer that the infection clears up quickly and a PICC line can be placed again.
Here is a run-down of his current status:
Weight
2 lb - Still holding steady!
Length
12.5" - We aren't measuring his length yet, so this is birth length.
Breathing
Eagan is on an oscillator and doing well. He is still breathing room air (21% oxygen).
His doctor wants to move him directly to CPAP but we are waiting until after the possible central line placement, as he would need to be on the ventilator or oscillator for the procedure.
Vitals
Eagan's vitals have been stable overall.
Vein Access
Eagan has no PICC line now and had a new IV put in.
Medications
Eagan's CRP, C-reactive protein, is now down further. Vancomycin is being given until the CRP is lower.
His white blood cell count is up to 49,000.
He is getting Amphotericin for the yeast infection.
His thyroid blood test came back low. He is on Sythroid for low thyroid.
Caffeine has been added to his medications. Caffeine has multiple
benefits for Eagan such as reducing his risk for cerebral palsy. The
main purpose of the caffeine is to help Eagan to remember to breathe,
preventing spells of apnea. He gets caffeine once a day.
He will be getting a glycerin suppository every 12 hours depending on
how often he is having bowel movements. It seems odd to be so excited
about dirty diapers, but he is peeing and pooping great which means
his body is functioning well!
Nutrition
Eagan's feedings were resumed tonight at 1 cc of breast milk every 3 hours.
Eagan is still getting vitamins and lipids (a healthy fat).
Transfusions
Eagan got transfusion #7 today.
April 22 - Transfusion #6
April 20 - Transfusion #5
April 19 - Transfusion #3 and Transfusion #4 of plasma
April 18 - Transfusion #2
April 15 - Eagan got his first blood transfusion tonight. This will be
the first of many transfusions Eagan will need. His hematocrit (the
amount of red blood cells in the blood) has been low, which is just
one of the many reasons he needs a transfusion. His blood is also
drawn for tests quite often. Even a tiny amount of blood is a lot of
blood coming from such a tiny baby. The transfusion will also help
Eagan maintain proper oxygenation.
Jaundice
Eagan's jaundice levels were still down today. He didn't need the bili lights at all.
Upcoming Tests
This week, the head ultrasound will be repeated.
Thank you for all your love, support and prayers.
Monday, April 23, 2012
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1 comments:
Hi Sarah! I just wanted to let you know I am friends with Kristi Stokes,and our little boys are buds. She was telling me about your sweet little boy and mentioned you had a blog, I just wanted to let you know that we have been praying for him & your family! Children are such blessings and we are thinking of you. I will def. be back to check in to see how he's doing:)
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