Eagan is finally off the ventilator. For a while there, it seemed like he wanted to keep it forever. Slowly but surely, bits of machinery are leaving our little room. First, the ventilator left, and today, a few medicine pumps made their exit. Fewer machines mean he is getting better! He made it up to 12 cc's on his feeds but after some digestive issues, was moved back down to 7. At his current weight, we need to get to 22 cc's to make it out the door to home. After our most recent eye exam, the retina specialist definitely thinks Eagan will need laser eye surgery. This will probably happen at the end of the month.
The big kids went on a family outing to the Georgia Aquarium today with my family. Since Eagan is stable now, we are trying to do a few fun things with the kids before Eagan comes home. Once Eagan is home, the house will be on lock down and no one will be able to go out an do much other than doctor appointments. If one of the older kids gets sick, Eagan is at a great risk of catching it. A simple virus could send us straight back to the hospital. Eli and Evelyn loved looking at the fish and watching the Dolphin Tales show. Evelyn was especially interested and we even had a hard time getting her to move from one exhibit to the next.
Weight
8 lb 6 oz
Breathing
Eagan is on a high flow nasal cannula. He is on 4 liters of oxygen per minute and 30% oxygen.
Vein and Artery Access
Eagan has a broviac sub-clavian line on the left side as of Day 103.
Medications
Zantac was added for his reflux.
Lasix is given every 24 hours to help him get rid of some excess fluid.
He is also on Diflucan as a preventative measure.
He is on Hydrocortisone for stress response.
Eagan is on Morphine every 2 hours.
He is also on Ativan every 6 hours.
Nutrition
He is getting
TPN and lipids. Eagan is also getting 7 cc's of breast milk every hour by feeding tube.
Transfusions
September 4 - Transfusion #39
Upcoming Tests
Eagan will have another eye exam September 24. His retina specialist thinks he will most likely need laser eye surgery following this exam.
2 comments:
I am so thrilled that Eagan is doing great! Reading your blog is inspirational and I cannot wait until you and your family are at home enjoying each others company.
Get well soon little Eagan !!
I'm so happy that Eagan is getting better! He's such a fighter, and you are an inspiration of strength. I cannot wait for the day you post he's on his way home!
My thoughts are with you guys! A fellow july '12 WTE mummy
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